Most people that know me hopefully see me as jovial for the most part. I pray I am slow to anger and generally cheerful. Every once in a while, though, I see something that upsets me.
Last week I read a story about a girl in Philadelphia that angered me. I am truly irate. My jaws were sore on Saturday morning from clenching my teeth all day Thursday and Friday. Even after trying to give myself some time to cool down, I am certain that I can’t. See, this little girl was denied a kidney transplant because she was mentally disabled, and I cannot keep silent about that. It’s a blatant slap in the face of civil rights.
Why is this important to MPAs? I have said on several occasions that MPAs, because of our role in society, need to be civil role models as well as corporate role models. That is, we need to go vote, volunteer, etc. Our actions need to reflect the values we hold. It would be hard to look up to someone in the boardroom when you knew that that person was slime when he left the office.
For me, this is no exception. It would be difficult for me to stand by passively on a topic too close to my heart with such a responsibility on my shoulders. So here it goes:
Amelia Rivera
Amelia Rivera is three years old and has Wolf-Hirschhorn syndrome. She needs a kidney transplant within a year, to live. However, a doctor at the Children’s Hospital of Philadelphia (“CHOP”) told her parents that she could not receive a kidney transplant there because she was “mentally retarded” and because of her “quality of life.” More upsetting is the fact that when her parents told the doctor that they would try to find a donor on their own, the doctor insisted that he still would not perform the transplant.
This is clearly discrimination against those with mental disabilities. Even while I am cautious to go to an extreme on this issue, it seems that there was no other rationale from this doctor to deny this child her right to live. Had several other reasons been given for this child to be denied her kidney, I may have been more understanding. As it is, I am not at all understanding. Continue reading A Stand
